On January 20, Akron Biotech CEO Dr. Claudia Zylberberg will launch an updated version of her children’s book, You’re Full of Genes, during the Future of Medicine Day at the Philip and Patricia Frost Museum of Science in Miami, Florida.
The book, an updated version of her 2001 original by the same title, takes children on a journey as they participate in activities that help them learn how cells, enzymes and the genetic code work to make them who they are. Three characters, including a gene named T-TAG, help tell this story and answer the question of how trillions of cells, each containing thousands of genes, craft what makes each person unique.
With a rapidly growing cell and gene therapy industry, Zylberberg felt there was no better time to renew the call for action first set forth almost two decades ago. “This project began as a labor of love, but as the cell and gene therapy industry propels forward at an unprecedented rate, I’ve found it is necessary to help educate the public, beginning with our youth. It’s important that patients understand these advanced medical technologies,” Zylberberg said.
Sales proceeds from You’re Full of Genes will support four groups working to promote scientific advancement and education in the field: the American Society of Gene & Cell Therapy (ASGCT), the Centre for Commercialization of Regenerative Medicine (CCRM) Foundation, the Alliance for Regenerative Medicine (ARM) Foundation for Cell & Gene Medicine and Duke University’s Center for Autism and Brain Development.
“Cell and gene-based medicines are transforming healthcare and changing lives. However, these therapies will achieve their vast potential only when the public, patients and caregivers understand and feel comfortable with how they work in the body,” said Stewart Parker, board chairperson for the ARM Foundation. “Dr. Zylberberg’s book is so helpful because it engages and educates children in a warm and interactive way, and helps families make informed healthcare decisions.”
“Children should be aware of these cutting-edge treatments that will be pervasive as they reach adulthood,” added Dr. Michael May, President of the CCRM Foundation. “Congratulations to Dr. Claudia Zylberberg for taking on this educational project. The CCRM Foundation, a private organization focused on supporting regenerative medicine-based technologies and cell and gene therapies, is very appreciative to Claudia for choosing to support our fundraising efforts.”
The Future of Medicine Day at the Philip and Patricia Frost Museum of Science will take place on January 20, 2020, from 11am-4pm ET. Dr. Zylberberg will be reading from the book and leading a series of interactive games beginning at 2:30pm. The Museum is located at 1101 Biscayne Blvd. in Miami, Florida. Akron’s participation in The Future of Medicine Day is sponsored by Phacilitate.
You’re Full of Genes is now available for purchase on Amazon.